I have been writing about Jenny's declining health for a few weeks now. Perhaps you have been reading between the lines that she will most likely not beat this as we had hoped.
On Thursday, April 28, she finally opened up and talked to me about it. I urged her to do this, as it was becoming pretty clear that this was not going well. I had known it for some time, within myself. Once she started to talk about it, there was relief for both of us.
At yesterday's visit to Dr. Mazgani, she confirmed what we already knew, and answered our questions. Jenny asked her about timelines, but she said she could not give her any, and of course she really can't.
Jenny talked about the fact that she is very very low on energy. Dr. Mazgani explained that as you go along, as the disease progresses, the body has the reserves to fight it. After awhile, the cells are so fast growing that they rob the body of these reserves, and your energy is sapped.
When Jenny was filling up last time, her stomach burned constantly with acid, a problem she has never had before. The doctor gave her a prescription for an acid preventer, one of the ones people take for acid reflux to help with that.
Another problem Jenny haas never had until now, is that she has trouble sleeping - especially when she has a lot of fluid. So she has ordered a sleeping pill for her.
Since Dr. Mazgani will be away from mid May until the end of June, she also ordered her a pain killer, just in case. So far she does not have pain, but she could get cramping etc later.
The doctor said that at the next drain, a decision will be made as to whether to put a permanent one in, so she can do it herself. She said we'll wait to see how full she gets, and how long it takes, but of course it will be no longer that 2 weeks from the last one.
She also told us who to call in her absence.
This is, of course, a terribly sad thing to be happening. But Jenny and I are having such good talks about it from all aspects. That is really helping. We are working this out, to take the dread and horror out of it.
She is certainly at the point of acknowledgement, and actually I think she is moving well into acceptance at this point.
We appreciate all of the good wishes, thoughts, prayers and other good stuff you are sending our way.
